marfangroup's Journal

Long Tall Folks
Posting Access:
Anybody , Moderated
Welcome to the Marfan journal. This differs from mail lists or chat groups. It is completely public, but is a good place for your marfan related issues, especially if you want them available in the future, with time dates. You have to be a Live Journal user to join, but anyone can reply to any post. For now, it is set on "anyone can post". We are, after all, an outstanding group.